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Listing (s) |
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| Worldwide support network for people who care about people with alagille syndrome. |
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| Google PR |
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| works to establish minimum standards of practice, to encourage professional growth, and to increase recognition of the genetic counselling profession in Canada. |
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| Google PR |
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| international not-for-profit organization dedicated to educating and bringing together families with children who have Alfi's syndrome. |
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| Google PR |
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| Official site of the International Costello Syndrome Support Group. Includes medical information, photographs and videos, therapy ideas, news, and links. |
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| Google PR |
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| Informational site provides details on newborn screening, on numerous diseases, medical information and support resources such as a newsletter and email List. |
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| Google PR |
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| Medical genetics knowledge base. NIH funded, expert-authored descriptions of inherited disorders. Covers genetic testing in diagnosis and management and genetic counseling of patients. |
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| Google PR |
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| provides a global resource for genetics information including a directory of condition-specific lay advocacy member groups. |
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| Google PR |
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| offers general information on conditions, DNA mutations, genetic testing, and research participation. |
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| Google PR |
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| national U.K. alliance of organizations which support children, families, and individuals affected by genetic disorders and genetic diseases. |
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| Google PR |
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| A non profit Organization dedicated to those families that are touched by a rare blood disease known as Hereditary Angioedema |
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| Google PR |
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